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Self Management

Conclusion

The importance of SM for individuals with SCI is evident through the widespread implementation of structured programs in diverse settings. SM programs provide the skills for individuals to co-manage their own care in various spheres and in real-time as experts of their own lived experiences. Common program characteristics were identified in this chapter using the TIDiers checklist with Lorig, Barlow’s, and PRISMS taxonomy further refining core components. They include focusing on the provision of information and support for symptom management and enhancing coping skills including psychological support. This was achieved through more traditional methods such as printed form and group interactions although virtual care was identified as a useful approach. Moving forward, there is a need for consensus on how to define SM and what taxonomies are well-suited for advancing work in this domain related to health and well-being of those with SCI. Doing so will help to identify appropriate outcome measures to assess what underlying variables may change as a result of participating in an SM program. Lastly, sexual health, vocational rehabilitation, as well as advocacy skill were identified by providers as important areas of future research on the topic of SM post-SCI.

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