Adams N, Beatty P. Consumer-driven personal assistance services: Independent living, community integration and the vocational rehabilitation process. Journal of Vocational Rehabilitation 1998; 10:93-101.
Anzai K, Young J, MacCullum J, Miller B, Jongbloed L. Factors influencing discharge location following high lesion spinal cord injury rehabilitation in British Columbia, Canada. Spinal Cord 2006; 44: 11-18.
Arango-Lasprilla, Plaza SLO, Drew A, Romero JLP, Pizarro JAA, Francis K, Kreutzer J. Family needs and psychosocial functioning of caregivers of individuals with spinal cord injury from Colombia, South America. NeuroRehabilitation 2010; 27: 83–93.
Barclay L, McDonald R, Lentin, P. Social and community participation following spinal cord injury: A critical review. International Journal of Rehabilitation Research 2014; 38: 1-19.
Barber DB, Woodard FL, Rogers SJ, Able AC. The efficacy of nursing education as an intervention in the treatment of recurrent urinary tract infections in individuals with spinal cord injury. SCI Nursing 1999; 16:54-56.
Beck LA, Scroggins, LM. Optimizing health of individuals with tetraplegia. SCI Nursing 2001; 18:181-186.
Bergmark BA, Winograd CH, Koopman C. Residence and quality of life determinants for adults with tetraplegia of traumatic spinal cord injury etiology. Spinal Cord 2008; 46:684-689.
Berry JF, Hitzman S, Stewart GW, Darwin P. A survey of attendant care arrangements in indigent persons with spinal cord injury. SCI Psychosocial Process 1995; 8:112-117.
Boschen KA, Gargaro J, Tonack MI. Community integration and quality of life comparisons among spinal cord injured, support provider, and comparative samples. Topics in Spinal Cord Injury Rehabilitation (2005a); 10:116-134.
Boschen KA, Gargaro J. Experiential outcomes of the SCI support provider role. Topics in Spinal Cord Injury Rehabilitation 2009; 14:69-87.
Boschen KA, Tonack, M, Gargaro, J. The impact of being a support provider to a person living in the community with a spinal cord injury. Rehabilitation Psychology 2005b; 50:397-407.
Boschen KA. Correlates of life satisfaction, residential satisfaction, and locus of control among adults with spinal cord injuries. Rehabilitation Counseling Bulletin 1996; 39:230-243.
Boschen KA. Housing options and preferences among urban-dwelling spinal cord injured young adults. Canadian Journal of Rehabilitation.1988; 2:31-40
Boschen KA. Life satisfaction, housing satisfaction and locus of control: A comparison between spinal cord injury and non-disabled individuals. Canadian Journal of Rehabilitation 1990; 4:75-85.
Bushnik T, Wright J and Burdsall D. Personal attendant turnover: Association with level of injury, burden of care, and psychosocial outcome. Topics in Spinal Cord Injury Rehabilitation 2007; 12:66-76.
Cesar KW, Garavan R, Laud P, Hayat M, Fiedler IG. Perceptions of environmental safety among individuals with spinal cord injury. American Journal of Physical Medicine & Rehabilitation 2002; 81:798-800.
Cockerill R, Durham N. Attendant care and its role in independent living as developed in transitional living centres. New England Journal of Human Services 1992; 11(2):17-22.
Cohen ME, Schemm RL. Client-centered occupational therapy for individuals with spinal cord injury. Occup Ther Health Care 2007; 21:1-15.
DeJong G, Branch LG, Corcoran PJ. Independent living outcomes in spinal cord injury: Multivariate analysis. Archives of Physical Medicine & Rehabilitation 1984; 65: 65-73.
DeJong G, Hughes J. Independent living: Methodology for measuring long-term outcome. Archives of Physical Medicine & Rehabilitation 1982; 63: 68-73.
DeVivo MJ, Kartus PL, Stover SL. Cause of death for patients with spinal cord injuries. Archives of Internal Medicine 1989; 149: 1761-1776.
Dickson A, Ward R, O’Brien G, Allan D, O’Carroll R. Difficulties adjusting to post-discharge life following a spinal cord injury; an interpretive phenomenological analysis. Psychology, Health and Medicine 2011; 16: 463-74.
Dwyer KJ Mulligan H. Community reintegration following spinal cord injury: Insights for health professionals in community rehabilitation services in New Zealand. New Zealand Journal of Physiotherapy 2015; 43: 75-85.
Forchheimer M, Tate DG. Enhancing community re-integration following spinal cord injury. NeuroRehabilitation 2004; 19:103-113.
Forrest G, Gombas G. Wheelchair-accessible housing: Its role in cost containment in spinal cord injury. Arch Phys Med Rehabil. 1995; 76:450-452.
Foster M, Amsters D, Carlson G. Spinal cord injury and family caregivers: A description of care and perception of service need. Australian Journal of Primary Health 2005; 11:91-100.
Frost FS, Brennan D, Roach MJ. Opportunities in community placement: An innovative personal care assistant training program in the inner city. Topics in Spinal Cord Injury Rehabilitation 1999; 4:94-102.
Fuhrer M J, Rossi LD, Gerken L, Nosek MA, Richards L. Relationships between Independent Living Centers and Medical Rehabilitation Services. Archives of Physical Medicine & Rehabilitation 1990; 71:519-522.
Gajraj-Singh P. Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji. Spinal Cord 2011; 49: 928–934.
Guilcher SJT, Casciaro T, Lemieux-Charles L, Craven C, McColl MA, Jaglal SB. Social networks and secondary health conditions: The critical secondary team for individuals with spinal cord injury. The Journal of Spinal Cord Medicine 2012; 35:330-342.
Gulati A, Yeo CJ, Cooney AD, McLean AN, Fraser MH, Allan DB. Functional outcome and discharge destination in elderly patients with spinal cord injuries. Spinal Cord 2010; 49: 215–218.
Harvey C, Wilson SE, Greene CG, Berkowitz M, Stripling TE. New estimates of the direct costs of traumatic spinal cord injuries: Results of a nationwide survey. Paraplegia 1992;30:834-850.
Heywood F. The health outcomes of housing adaptations. Disability & Society 2004; 19:129-143.
Hoeman SP, Winters DM. Theory-based case management: High cervical spinal cord injury. Home Healthcare Nurse.1990; 8:25-33.
Holicky R. Caring for the caregivers: The hidden victims of illness and disability. Rehabilitation Nursing 1996; 21:247-252.
Johnson RL, Brooks CA, Whiteneck GG. Cost of traumatic spinal cord injury in a population-based registry. Spinal Cord 1996; 34:470-480.
Kennedy P, Sherlock O, McClelland M, Short D, Royle J, Wilson C. A multi-centre study of the community needs of people with spinal cord injuries: the first 18 months. Spinal Cord 2010; 48: 15–20.
Krueger H, Noonan VK, Trenaman LM, Joshi P, Rivers CS. The economic burden of traumatic spinal cord injury in Canada. Chronic Diseases and Injuries in Canada. 2013. Online accessed on May 1, 2014. http://www.phac-aspc.gc.ca/publicat/cdic-mcbc/33-3/ar-01-eng.php#t1-ft5
Kuipers P, Kendall MB, Amsters D, Pershouse K, Schuurs S. Descriptions of community by people with spinal cord injuries: concepts to inform community integration and community rehabilitation. International Journal of Rehabilitation Research 2011; 34: 167-174.
Litvak S, Zukas H, Heumann J. Attending to America: Personal assistance for independent living – Report of the National Survey of Attendant Services Programs in the U.S. World Institute on Disability. Oakland, CA, pg 19: 1987.
Mattson-Prince J. A rational approach to long-term care: Comparing the independent living model with agency-based care for persons with high spinal cord injuries. Spinal Cord 1997: 35; 326-331.
Mazurek M, Johnstone B, Hagglund K, Mokelke E, Lammy A, Yamato Y. Geographic differences in traumatic brain injury and spinal cord injury réhabilitation. International Journal of Therapy and Rehabilitation 2011; 18: 551-556.
McAweeney MJ, Forchheimer M, Tate DG. Identifying the unmet independent living needs of persons with spinal cord injury. J.Rehabil. 1996; 62:29-34.
Meyer M, Donelly M, Weerakoon P. ‘They’re taking the place of my hands’: Perspectives of people using personal care. Disability & Society 2007; 22:595-608.
Owen TR, Marini I. Attendant care and spinal cord injury: Usage patterns and perspectives for those with life care plans. Journal of Life Care Planning 2012; 10:33-44.
Pettersson C, Brandt A, Lexell EM, Iwarsson S, Autonomy and housing accessibility among powered mobility device users. AJOT: American Journal of Occupational Therapy 2015; 69:1-9.
Pomeranz J, Shaw LR, Sawyer HW, Velozo CA. Consensus among life care planners regarding activities to consider when recommending personal attendant care services for individuals with spinal cord injury: A Delphi study. Journal of Life Case Planning 2006; 5(1&2):7-22.
Robinson-Whelan S, Rintala DH. Informal care providers for veterans with SCI: Who are they and how are they doing? Journal of Rehabilitation Research and Development 2003; 40:511-516.
Rutherford Owen T, Marini I. Attendant Care and Spinal Cord Injury: Usage Patterns and Perspectives for Those with Life Care Plans. Journal of Life Care Planning 2012; 10:33-43.
Schopp LH, Clark MJ, Hagglund KJ, Mokelke EK, Stout BJ, Mazurek MO. Evaluation of a consumer- personal assistant training project. Disability and Rehabilitation 2007; 29:403-410.
Scovil CY, Ranabhat MK, Craighead IB, Wee J. Follow-up study of spinal cord injured patients after discharge from inpatient rehabilitation in Nepal in 2007. Spinal Cord 2012; 50:232-237.
Shackleford M, Farley T, Vines CL. A comparison of women and men with spinal cord injury. Spinal Cord 1998; 36: 337-339.
Smith B, Caddick N. The impact of living in a care home on the health and wellbeing of spinal cord injured people. International Journal of Environmental Research and Public Health 2015; 12: 4185-202.
Tate DG, Forchheimer M, Maynard F, Dijkers M. Predicting depression and psychological distress in persons with spinal cord injury based on indicators of handicap. American Journal of Physical Medicine & Rehabilitation 1994b; 73: 175-183.
Tate DG, Forchheimer M. Enhancing community reintegration after inpatient rehabilitation for persons with spinal cord injury. Topics in Spinal Cord Injury Rehabilitation 1998;4:42-55.
Tate DG, Stiers W, Daugherty J, Forchheimer M, Cohen E, Hansen N. The effects of insurance benefits coverage on functional and psychosocial outcomes after spinal cord injury. Archives of Physical Medicine & Rehabilitation 1994a; 75: 407-414.
U.S. Bureau of Labor Statistics, Employment Projections program. The Occupational Outlook Handbook: Home Health Aides and Personal Care Aides. Available at: https://www.bls.gov/ooh/healthcare/home-health-aides-and-personal-care-aides.htm#tab-6. Accessed March 12, 2019.
van Loo MA, Post MWM, Bloemen JHA, van Asbeck FWA. Care needs of persons with long-term spinal cord injury living at home in the Netherlands. Spinal Cord 2010; 48: 423–428.
Weitzenkamp DA, Whiteneck GG, Lammertse DP. Predictors of personal care assistance for people with spinal cord injury. Archives of Physical Medicine & Rehabilitation 2002; 83: 1399-1405.