AA

Caregiver Burden

Irene, Ms MB’s daughter, is a full-time accountant, mother of twin teenagers, and actively involved in church volunteer activities. Irene has been helping Ms MB with shopping, managing bowel and bladder when in the community and financial decision making while she is in rehabilitation. Irene complains to you of fatigue, frustration, and the sensation of being overwhelmed by this new responsibility. 
What issues and concerns do family caregivers have post SCI?
1.Family caregivers report decreased choice, control and productivity and being ill-prepared for treatment and discharge of the SCI family member. They report challenges in dealing with the insurance system and feel themselves to be a forgotten group.
2. Family caregivers report greater stress and burden post-injury.   
What is predictive of caregiver burden in family?
1. ADL support provided, psychological problems of the person with the SCI, age and gender of the family caregiver, level of functioning of the person with the SCI, and the length of time since injury are predictive of burden in family members.
What is predictive of adjustment to caregiver burden in family members?
1. Social support is predictive of adjustment in the family member while type and duration of SCI, socio-economic status, or occupation of spouse are not.