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Inclusion criteria for Outcome Measures included in SCIRE

Inclusion criteria:

o   Measures with Level 1 studies, defined by Kalpakjian et al. (2009) as studies with a primary aim to evaluate the psychometric properties of a measure.

o   Measures that are familiar and of interest to clinicians**.

o   Measures (N = 4) that are commonly known and used internationally.

As a result, 47 measures were included in the original SCIRE document, 29 were added in version 2, 15 in version 3, 13 in version 4, and 3 in version 5, for a total of 107 measures.

*Version 6 review of SCIRE is underway, and we have completed updating the majority of the measures with new studies and improved presentation of the Clinical Summary. There are a few measures outstanding but SCIRE 6.0 will likely have 120+ measures validated for people with SCI. 

  • **For version 1, a table identifying all measures used in SCI was developed and clinicians (nurses, occupational therapists, physiatrists, physical therapists, psychologists, recreation therapists and social workers) from GF Strong Rehabilitation Centre (Vancouver, British Columbia) and Parkwood Hospital (London, Ontario) were surveyed. Measures were then selected for review based on receiving at least 5 tallies of interest and/or familiarity.
  • A similar process was carried out for identifying pertinent measures for inclusion in the updates: another table was developed that identified all new measures along with those measures that were not included in the original version. Clinicians and scientists then reviewed the list and selected measures to include in updates.

Searching the Literature

  • PubMed, MEDLINE, CINAHL, Embase, HaPI, PsycINFO, and Sportdiscus electronic databases were searched.
  • Search extended from:
    Version 1: 1986 to January 2006,
    Version 2: from 2006 to January 2008,
    Version 3: from 2008 through to the end of 2009,
    Version 4: from end of 2009 to end of 2012.
  • Version 5: from end of 2012 to end of 2013.
  • Version 6: from 2014 to the end of 2016.
  • Additional searching was conducted by archiving the references of papers obtained from the electronic search.

The key word “spinal cord injury” was used for each of the databases; the following terms varied in combination with spinal cord injury depending on the database used:

  • Validation studies, instrument validation, external validity, internal validity, criterion-related validity, concurrent validity, discriminant validity, content validity, face validity, predictive validity, reliability, interrater reliability, intrarater reliability, test-retest reliability, reproducibility, responsiveness, sensitivity to change
  • Evidence-based medicine
  • Outcome measures, clinical assessment tools, scales and measures.

A database file was established using RefWorks to organize potential articles of interest. After eliminating duplicate manuscripts, data extractors reviewed titles and abstracts in order to retain relevant papers. At this point all of the articles were read and the relevant information (reliability, validity and responsiveness coefficients and descriptions) was extracted. See Appendix 1 for a copy of the data extraction form.